Deb’s Story

“She’ll never live.” These were the first words a new mother heard from the attending nurse when her child was born. The baby was blue, weighed less than four pounds, and had some type of serious heart “problem.” That child was me. As a child, I never really...

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Rich’s Story

I was born in 1967 with a complex congenital heart condition. Separately, each one was bad but together they probably saved my life. I was born with Transposition of the Great Arteries, a very large ventricular defect (to the point it is now termed as a single...

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Ava’s Story

My name is Ava Bernardino. I was born in 2001 with ASD, VSD, pulmonary vein stenosis, hypoplastic right ventricle, and tricuspid atresia. I had seven open heart surgeries, the first when I was 13 years old and the most recent in 2011. When I was born, my parents were...

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Kim’s Story

A “blue baby” became my title at the age of two weeks old. It was July 1960 when not much was known about congenital heart defects. The doctors explained to my parents that because I was only two weeks old, I was too young and too small for the surgery I needed. “Take...

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